Huntington's Disease

Educational Series

The Education Conference will offer new strategies to manage symptoms, plan for challenges and gain skills to make each day easier.  We’ll have speaker sessions for everyone in the HD community, from those living with HD, those at-risk, HD caregivers, and youth. You won’t want to miss this FREE educational series packed with practical information.

Community Event

In person in Raleigh | Spring 2022

Join our in-person event as we learn, share, and contribute to the open source conversation. You'll have the opportunity to connect with peers and enjoy fun activities.

IMPORTANT UPDATE: Proof of Covid-19 Vaccination is required to attend. If you don't have proof of vaccination, you are required to provide proof of a negative covid test.

  • 1 Day event
  • Opportunity to speak with the experts
  • Live Ask the Experts Panel
  • Connect with families
  • Free lunch and snacks
  • Registration is encouraged, but walk-ins are welcome


Virtual Series

Monthly Webinars & Workshops

A series of free virtual events that feature keynotes, HD experts, best practices, practical information, and HD stories that will put you on the road to preparation and progress. Build your agenda with breakout sessions and content geared toward the topics most relevant to your path.

  • Build your own agenda
  • Monthly program
  • 8 participants per interactive workshop
  • 30-60 minutes session
  • Unlimited participants per webinar


Online Registration will open soon.

Don't miss out. The Webinars Start in March 2022.


Community Get Together

Spring 2022

2409 Crabtree Blvd, Ste 107

Raleigh, NC 27604

We will wrap up the day with an opportunity for you to ask the experts in the room those questions you have on your mind. With so many experts in one room, you won’t want to miss this opportunity! Be sure to join in on this highly enlightening session.

Do You Have a Question for the Experts?

Participate in the Online Webinars to Learn:

  • Road Rage: Calming Irritability
  • Asleep at the Wheel: Health Habits and Better Sleep
  • Don’t Drink and Drive: Healthy Coping Options
  • Express Lane: Learning about Clinical Trials
  • Student Driver: Growing up at-risk
  • DMV – What to Expect when you got to an HD Specialist or HD Clinic
  • Blue Lights – Interacting with Law Enforcement
  • Safe Driving – Suicide Prevention and Mental Health
  • HOV – Building Your Support Network and Care Team
  • Stop and Go: Treating Chorea
  • Texting and Driving: How to Talk to Family About Getting HD Treatment

Don't miss out. Register today!


This conference is made possible by our generous sponsor: