HD REACH VIRTUAL CONFERENCE!

2021 HD HIVE Education Conference

May 1, 2021

The Online Education Conference will offer new strategies to manage symptoms, plan for challenges and gain skills to make each day easier.  We’ll have speaker sessions for everyone in the HD community, from those living with HD, those at-risk for the disease, HD caregivers, and youth. You won’t want to miss this VIRTUAL educational conference packed with practical information.

Registering also gets you access to day full of LIVE sessions!
Saturday, May 1st 10am EST

RESERVE MY SPOT

Here's what to expect.

We will kickoff with Welcome to the HD Hive at 10am EST and conclude with an engaging LIVE Ask the Experts session at 2pm EST. Throughout the day you will have the opportunity to interact with others just like you in the community as well as speakers through chat, live polls, Q&A, and roundtable discussions. Recordings of the live sessions as well as additional bonus content will be available once the conference has concluded.

ADDITIONAL TOPICS INCLUDE: Bead Making, How to Talk About Genetic Testing for Teens and Young Adults, Chorea, Anosognosia: Why the Person Living with HD doesn't "Get" their Disease

10:00-10:10

Welcome to the HD Hive

Debbi Fox-Davis & Chad Merrell

10:15-10:25

Update on Research

Dr. Victor Sung

10:25-10:45

Sensors & Digital Technologies for HD

Ashkan Vaziri, PhD

10:45-11:05

Fall Seven Times, Get up Eight: Staying Resilient Through Trauma, Grief, and Isolation

Dr. Craig Chepke

11:05-11:25

Spiritual Suffering in Caregivers

Buddy Marterre, MD, MDiv

11:25-11:55

Therapeutic Art-Making: Connecting to Yourself and the Present Moment Through Art

Sarah Anacleto

12:00-12:20

Lunch Tables

We'll break out into topics relating to youth, behaviors, new to HD, caregiving, and non-medical remedies.

12:20-12:50

Skill Development for Caregivers

Dr. Mary Edmondson

12:50-1:05

Update on Clinical Trials

Member from Huntington Study Group

1:05-1:25

But I Saw it on the Internet: Making Decisions from Questionable Sources

Dr. Bonnie Hennig-Trestman

1:20-2:00

Ask the Experts

Dr. Mary Edmondson, Dr. Bonnie-Hennig-Trestman, Dr. Craig Chepke, Dr. Burton Scott, Dr. Victor Sung, and Dr. Buddy Marterre

Don't miss out. The Conference Starts
Saturday, May 1st at 10am EST

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