Huntington's Disease

Educational Series

The Education Conference will focus on common issues that are rarely discussed offering new strategies to manage symptoms, plan for challenges and gain skills to make each day easier.  We’ll have speaker sessions for everyone in the HD community, from those living with HD, those at-risk, HD caregivers, and youth. You won’t want to miss this FREE educational series packed with practical information.

REGISTER

Community Event

In person on March 25th in Raleigh, NC

Join our in-person event as we learn, share, and contribute to the open source conversation. You'll have the opportunity to connect with families, medical professionals, and HD researchers.

  • 1 Day event
  • Breakout sessions for care providers
  • Live Ask the Experts Panel
  • Connect with families
  • Free lunch and snacks
  • Registration is encouraged, but walk-ins are welcome

Free!

Virtual Series

Monthly Webinars & Workshops

A series of free virtual events that feature a panel of caregivers that are gene positive, gene negative and at-risk for HD interviewing HD experts on common problems that are rarely discussed. Participants are encouraged to ask questions and share concerns.

  • Watch at your convenience
  • Panel of HD experts and people with lived experience
  • Share webinars with people you care about
  • 30-60 minute sessions
  • Rarely discussed topics

Free!

Don't miss out. The Community Event starts March 25th!

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ASK THE EXPERTS

You have questions.
We have answers.

We will kick-off the day with an opportunity for you to ask medical experts and HD researchers your questions about symptom management and the future of HD treatments. Please tell us what you’d like to know more about.

Monthly Webinars.

Our panelists can't wait to start talking about those topics we usually shy away from.

CONVENIENCE IS KEY

That's right. Each of our webinars will be recorded and posted for your viewing pleasure.

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PANELISTS YOU CAN TRUST

We love what we do and it shows in our work, and on the faces of our panelists. Each panel consists of someone at-risk for HD, gene-positive, and gene-negative.

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RARE TOPICS

Potential topics include Illegal drug use, OCD shopping, Bathroom issues, Bedroom issues, Racism, Paying for treatment, Suicide, Losing executive function, Sexual impulsiveness, Stealing, Death and dying